Saturday, May 3, 2008

Sometimes I forget...


I read a wonderful post over at Fr. Schnippel's blog on a speech his sister gave recently. You can read the entire text HERE.

Sometimes, life here with the boys(and their autism) is hard but it takes a witness like this(Tania) to realize how far both of my boys have come. My oldest son could not be left in a room alone because he would harm himself or break things(or run out into a busy street...yes, he knew how to undo locks and deadbolts). This was the norm until age 3.5. He would kick me in the stomach when I was pregnant with son #2. Other than a therapist coming in one or two days a week, I had very little help. We did not have a strong support system and with special needs children(who are unpredictable) play dates and friends were out. When son #2 came along, he was fine until age 4 when he received his second MMR and other vaccines. Within a month he lost toileting, speech, the ability to sleep through the night and making eye contact. He could only scribble when the other kids in kindergarten were making trees, letters, shapes and people. I was still very much alone to deal with daily life and we took everything with prayer and tears. Thankfully, they were given the opportunity to attend a Catholic school. This was a miracle and I continue to thank God everyday for this gift(as I know it is not the norm).

Both boys have been on honor roll, they have both made their First Communion, they have friends, they have a sense of humor. Last night at Mass, my oldest came out after Mass to extinguish the candles and they were very high. I was nervous. But then as I stood in the doorway, I told God silently that I wanted to preserve that image as long as I could. He reached all the candles. He loves serving at Mass. He has said "That is all I want to do, Mom". I have never forced him or pushed. In fact, I was nervous about him taking on such a task with his disability. But I covered my bases, made sure he was okay and he continues to amaze me. Autistic children shouldn't be able to be still at Mass(let alone serve at the altar). They usually don't make friends. They rarely are admitted to a "normal" Catholic school. It is rare that they "get" God or faith(because they are very literal). They not only "get" God but understand the faith and turn to prayer whenever life lodges a hard ball at them. So what happened? Why are they different among the different? Prayer. Maybe a gift from God. But as I watched my oldest in front of that amazing altar, I didn't want time to continue. I wanted him to stay little, and innocent and a miracle. But that wouldn't be God's will. So time will go on and things will change. They will grow up and I will pray that God leads them to be what He created them to be. It is hard for me not to be hopeful when they have defied the odds. Who knows what God has in store for them...
(Thank you, Father Kyle. It took the words of your sister for me to be so thankful for all I have. Autism and all.)

10 comments:

gemoftheocean said...

Thank you, that was beautiful.

Karen

Father Schnippel said...

Thorn,

You're quite welcome.

My niece Tristyn has taught us all about what it means to not take life for granted and cherish those little moments. She has a great way of leaning up against you, falling into your arms, trusting that you will catch her. As you know, it is great when she makes these little connections and you know that God is with her, even if we can't always see that connection.

Barb said...

Beautiful post..

Padre Steve said...

I thought the reflection was beautiful and a testimony to your faith! God will continue to do miracles in your family... I am sure of it! God bless you and the boys! Padre Steve, SDB

FloridaWife said...

That is a beautiful post.

Rich Leonardi said...

Indeed. Thank you for sharing the story of your boys, Thorn.

a thorn in the pew said...

Thank you all for your kind words.

Samantha said...

What a good moment! I hope you have millions more!

Tania said...

Something made me sit down this morning to take a few moments to read my brothers blog. I came across your story and I needed this today! We have been on such a rollercoaster ride with Tristyn, we never know what kind of a day it is going to be when she wakes. We need to get in touch and support each other as we both "get" what the other is going through. I pray for a breakthrough with Tristyn like you have had with your boys!

Leticia said...

I blog over at Cause of Our Joy and am compiling stories like yours from Catholic moms of special needs children for a book. Let me know if you would like to submit this story of another like it to inspire other moms.
leticia77@optonline.net